Who Are CLADDAG and Why Were We Set Up?
We are a Leaseholder Disability Action Group, campaigning on issues impacting disabled leaseholders trapped in the cladding and building safety crisis scandal. In the absence of any group representing disabled leaseholders, we set up CLADDAG in December 2020. This was after Sarah Rennie saw a blog I had written for Greater Manchester Housing Action, about disabled leaseholders not being included within the conversation. At that time, it seemed that our existence wasn’t recognised.
We campaign hard and aim to improve disabled representation, within campaigning, discussions and the media. This is about increasing visibility, as well as highlighting issues specific to us.
We use the term ‘disabled’ loosely in the aim of being inclusive. Many people with health conditions don’t identify as disabled. This might include deaf or older people for example.
Whilst we are disabled leaseholders and there are specific issues related to leasehold, we recognise that many impacts us the same as other leaseholders. Also, that some issues that impact us, affect disabled people across housing tenures. So as allies, we work with individuals, groups and organisations, across all categories with common aims. We learn from each other and by uniting, our combined strength increases our influence.
Our Campaign and Our Asks
In May 2022, the Government announced it would not be implementing Personal Emergency Evacuation Plans (PEEPs), although it had previously committed to doing so. A PEEP is a plan that helps people who cannot self-evacuate in the event of a fire, which could include a knock at their door or equipment such as a device alerting a deaf person that the fire alarm is going off. The Grenfell Inquiry made important recommendations for their implementation and they also received overwhelming support (87% in favour) from the Government consultation on PEEPs. The Home Office had secret meetings with private lobbyists who raised concerns which led them to this decision, based on ‘practicality,’ ‘proportionality,’ and ‘safety,’ but with no underpinning evidence.
Following the announcement, another consultation on Emergency Evacuation Information Sharing (EEIS) was launched, which doesn’t resemble PEEPs and is clearly an inappropriate standalone alternative. This closed in August 2022.
So not only was anyone given the opportunity to respond to these concerns, but the Fire Minister, referred to disabled people as ‘getting in the way of others’ during evacuations. Such throwaway comments have been used by many throughout these consultations. Others include, ‘you should be living on the ground floor,’ being referred to as ‘those people,’ ‘evacuation chairs get in the way of everyone,’ ‘equipment is too expensive,’ ‘the Grenfell fire was rare, so the risk is low’ They aren’t easy spaces to engage in generally and is why many disabled people are reluctant to or refuse to.
Focusing so much on cost, with no projected evidenced based costs, is a typical tactic, to make us appear unreasonable, reinforced by flippant comments, so that not only do we feel inconvenient and a burden, but others about us do too. How much is a disabled life worth?
When you look at the timeline from the Grenfell fire in 2017 (which caused the deaths of 40% of the disabled residents living in the tower at the time), it was in 2018 that the Grenfell Inquiry recommended the Government enact PEEPs. Now we’re still in a situation where nothing has been decided, following three consultations. The relatives of Sakina Afrasebi, a disabled woman who died in the Grenfell fire, took the Home Office to Judicial Review in 2020, as the first consultation was on a watered down version of PEEPs. This led to the second consultation on PEEPs.
It feels that the human aspect is often overlooked, especially when discussing such issues often coldly in online meetings and some questions on forms being tick box questions.
For over five years the fight for fire safety equality continues. So there was no alternative, but to request a judicial review, as the only way of holding the Government to account on their decision, which we find discriminatory. On equality grounds, people should not be prevented from evacuating a building if they wish to, at the same time as their neighbours, only because they have a disability or are pregnant for example.
Our application was granted, stating that we have an arguable case, and the hearing is due to be held later this year. In order for us to be able to do this, we need to reach our crowdfunding target towards legal costs, in case we lose. Our legal team are working on a ‘no win,’ ‘no fee’ basis.
Equality in evacuation has become our current main focus, while most of us are currently in limbo, waiting to see if the Building Safety Act will cover our homes. This is going to take years to complete, so the most urgent issue is equality to means of escape.
In our overall campaign, we join with our allies to demand three actions:
- Ensure disabled leaseholders live in accessible homes of their choice, unimpeded by the building safety crisis.
- Protect disabled leaseholders from the costs resulting from remedial safety works.
- Provide disabled leaseholders with aids and equipment for safe evacuation.
Escalated related costs are wholly infeasible for all leaseholders. However, disabled and older people are more likely to be supported by state benefits or pensions. Such restricted incomes massively impact ability to fund remediation costs, including insurance hikes. Some of our flats are more than a home and in a sense are also a care setting, as they’ve been adapted for our needs, e.g. wet room installation, ceiling tracking for hoists. For others, their conditions have progressed, meaning they need to move somewhere accessible, but they are stuck, unable to sell.
The majority of disabled people we represent do not have PEEPs to evacuate their homes, many of which are in highly dangerous blocks of flats. Managing agents are reluctant or refuse to discuss disabled leaseholders’ needs.
Local and National Campaigning
From grassroots to national organisations, we’ve worked with numerous campaign groups, fire experts, politicians, fire and rescue services, unions and will continue to do so. We’ve had huge media coverage, partnered with organisations including Grenfell United, Disability Rights UK and Social Housing Action Campaign, as well as End Our Cladding Scandal and local groups under that umbrella, such as Manchester Cladiators. We’ve also met with local councils.
This has all come at a huge negative impact on our physical and mental health, but we do what we can, when we can. We know what it’s like to live in unsafe homes, which currently isn’t physically or financially secure, but the opposite. Combined with the fact that most disabled people are denied access to a PEEP, means our situations are confounded. It’s on your mind constantly, no matter what you do and where you go. There is literally no escape. People advise you to take time out, switch off and rest, but how is that realistic?
Trust in all associated companies and services has been lost, which will take decades to repair. I live in a midrise block, informed of fire safety issues in 2019, including timber cladding and balconies and compartmentation issues.
For too long ‘stay put’ as a strategy has not even been discussed publicly. It’s taken a devastating fire where so many lives were lost for this to come to light. I hadn’t previously questioned it, even having a disabled mother, in all the jobs I had working with disabled people and unexpectedly becoming disabled myself as an adult.
People contact us with all sorts of harrowing experiences. They are scared and also angry that this is even a fight. It should never have come to this.
Our asks for Labour’s policies
Therefore, within this crisis and alongside others, including the cost of living crisis, our contribution and focus, as part of all this, is mainly in the fight for PEEPs. Sadly, fire safety inequality is yet another example of how the government views our lives as less ‘worthy.’ Finally, I urge the Labour Party to incorporate our three demands into policy and support our legal battle.
We #DemandBetter #EnoughIsEnough
Twitter: @Claddag
Facebook: @LeaseholderDAG
